http://www.ccj.me.uk/jjblog/index.php Copyright 2012, John, Jane John, Jane en-US SPHPBLOG 0.4.8 http://www.ccj.me.uk/jjblog/index.php?entry=entry090226-003041 September 23rd 1972 - February 29th 2008


Eternal rest grant unto John Oh Lord

& let perpetual Light shine upon him.

May he rest in Peace.

Amen

'Love does not end with dying or leave with the last breath. For someone you've loved deeply, love does not end with death' John Addey




"Be still and know that I am God" Psalm 46 v.10




]]> http://www.ccj.me.uk/jjblog/index.php?entry=entry090226-003041 John, Jane Thu, 26 Feb 2009 00:30:41 GMT http://www.ccj.me.uk/jjblog/comments.php?y=09&m=02&entry=entry090226-003041 http://www.ccj.me.uk/jjblog/index.php?entry=entry080401-212557
Where:

Lymm Baptist Church
Higher Lane
Lymm
Cheshire
WA13 OAZ

When:

Sunday 6th April at 4pm

Website address for map:

http://www.multimap.com/maps/?hloc=GB|WA13%20OAZ

Chrissie and Chris]]> http://www.ccj.me.uk/jjblog/index.php?entry=entry080401-212557 John, Jane Tue, 01 Apr 2008 20:25:57 GMT http://www.ccj.me.uk/jjblog/comments.php?y=08&m=04&entry=entry080401-212557 http://www.ccj.me.uk/jjblog/index.php?entry=entry080305-222653 You can however give donations through the link below:

Cystic Fybrosis Trust
http://www.justgiving.com/johnmortishire


And I see your true colours shining through,
I see your true colours and that's why I love you
So don't be afraid to let them show
True colours are beautiful
Like a rainbow

John wrote out these words for me a while ago before his transplant.
We both loved to sing this song and even though he was so poorly, he would always express his love to me.

Many have asked if there will be a particular dress code. As we come together on Tuesday, despite the sadness we all feel, we would also like to remember the joy John brought to our lives in what we wear. Please feel free to wear colour.


There is limited parking at the Church. Parking is available in the surrounding streets and the multi-storey car park is approx. 10 minutes walk away.
]]> http://www.ccj.me.uk/jjblog/index.php?entry=entry080305-222653 John, Jane Wed, 05 Mar 2008 22:26:53 GMT http://www.ccj.me.uk/jjblog/comments.php?y=08&m=03&entry=entry080305-222653 http://www.ccj.me.uk/jjblog/index.php?entry=entry080304-231611
Location: Christ Church, 91 Coombe Rd, New Malden, Surrey, KT3 4RE.

This will be followed by a committal at Putney Vale Crematorium at 3.20p.m. mainly for members of the immediate family. They will return to Christ Church shortly afterwards to join those who are able to remain for light refreshments.

All who would like to be with us are warmly invited to attend.

For those coming by public transport the nearest main line station is New Malden, South West trains.

Location link:
http://www.streetmap.co.uk/newmap.srf?x ... ;sv=521250,168750&st=4&ar=Y

I would like to give warm thanks, on behalf of Jane and our families, for every prayer, thought and support given by many friends around the world at this time.

David
]]> http://www.ccj.me.uk/jjblog/index.php?entry=entry080304-231611 John, Jane Tue, 04 Mar 2008 23:16:11 GMT http://www.ccj.me.uk/jjblog/comments.php?y=08&m=03&entry=entry080304-231611 http://www.ccj.me.uk/jjblog/index.php?entry=entry080301-162052
A flood of emotions well up as I write about the loss of such a dear friend and perhaps the foolish hope that we all seemed to cling onto, praying each day for a miracle of new life here and now - in this life - for John, experiencing in part the roller coaster ride of emotions, hopes and fears that John and Jane were living through.

And yet when despair and pain start to overwhelm, I know in my heart that JonnyBoy ran his race hard, faithfully and with tremendous courage and that he finished his race strong.

This is, in part, John's legacy to us all - a testimony of strength, faith and perseverance - never complaining, always hoping, always battling on, always loving - one I hope to constantly remember and draw inspiration from.

Another part of John's legacy, that continues to live on, is his relationship with Jane. None can have missed the love that they shared and their tremendous devotion towards one another, particularly the tireless dedication of Jane - always serving, always supporting, always faithful.

Underlying all of the above and evident in many other ways, I think all who knew John were well aware of his faith. This helps my heart turn slowly from mourning to joy enabling me to celebrate his life and the promise of life to come - a place of no more mourning or pain (Rev 21:4) - a place where I know John will be laughing and free once again.

For whom have I in heaven but you? And earth has nothing I desire besides you. My flesh and my heart may fail, but God is the strength of my heart and my portion forever. Psalm 73:25

Chris


]]> http://www.ccj.me.uk/jjblog/index.php?entry=entry080301-162052 John, Jane Sat, 01 Mar 2008 16:20:52 GMT http://www.ccj.me.uk/jjblog/comments.php?y=08&m=03&entry=entry080301-162052 http://www.ccj.me.uk/jjblog/index.php?entry=entry080228-223448
It had become more difficult to ventilate John's lungs and therefore to clear the carbon dioxide. In order to work out why this was, he had another Bronchoscopy (camera into the lungs). This showed that the fungal infection he has had since before Christmas is blocking some of the airways. This means that John's lungs are 'stiff' making ventilation very difficult and requiring very high pressures on the ventilator.

In order to keep John comfortable with these very high pressures, he has been fully sedated again.

The situation is very tough as John has been on antifungal medication for some time at high doses. He is on two treatments where normally one would be sufficient. This means that the infection has worsened despite this treatment.

John urgently needs God to intervene, please pray for him that the fungal infection would be healed and he would be able to breathe easily again.

Please also pray for strength for Jane.


]]> http://www.ccj.me.uk/jjblog/index.php?entry=entry080228-223448 John, Jane Thu, 28 Feb 2008 22:34:48 GMT http://www.ccj.me.uk/jjblog/comments.php?y=08&m=02&entry=entry080228-223448 http://www.ccj.me.uk/jjblog/index.php?entry=entry080228-090523
Yesterday, John's CO2 level shot up in the morning. He spent much of the day in broken sleep. As a result he was unable to make very little progress in terms of rehab.

By the evening they decided to up the support on the ventilator to help John with his breathing.

John has had a few disturbed nights recently. There is a patient who is quite ill next to him. He is in need of a variety of machines many of which shrill and bleep during the day and also the night. John is trying so hard to stay strong and positive in this very difficult environment. His patience is so admirable.

Harefield is a very small village, a million miles from the selection of shops at home or the City. I was able to navigate to a nearby Tesco and Waitrose to find some earplugs and a makeshift eye mask for him. When I returned, John had woken up so I was able to talk to him and try to orientate him a little.

I really hope John had a more comfortable night and that his body gets rid of the CO2 today so that he can take a step forward.

Jx]]> http://www.ccj.me.uk/jjblog/index.php?entry=entry080228-090523 John, Jane Thu, 28 Feb 2008 09:05:23 GMT http://www.ccj.me.uk/jjblog/comments.php?y=08&m=02&entry=entry080228-090523 http://www.ccj.me.uk/jjblog/index.php?entry=entry080226-090351
Many patients in intensive care are sedated. John's situation is different, and it can be quite anxious when people are looking at the machines, the notes, talking about you and not updating you. Some doctors do not talk to him and he wanted reassurance as to the plan for him.

The anaesthetic team visited yesterday evening and I was able to ask some questions on his behalf. The process of weaning is taking a long time, but he is making progress in that he is initiating more breaths. It would appear that John will need to stay on the ventilator for at least a couple of weeks more. In terms of infection control, the microbiologist is happy with the situation they continue to culture blood and lung secretions and are monitoring this carefully. This is particularly important with transplant patients since their immune systems are suppressed so that the body does not reject the new organ.

Yesterday the OT team came to review the weakness in John's hands. they have given him some theraputty and we have some exercises to work on each day.

He did not manage to stand yesterday. The physio came at the same time as a doctor who tried in vain to take blood from John's arm. According to John this doctor was not particularly competent in taking the blood and it was quite a painful experience. John's endurance in suffering is inspirational.

He sat in the chair twice for a long period of time which is fantastic - John I'm so proud of you.

We also had a lovely, communicative, experienced nurse yesterday which is something we pray for every day.

Thanks for your lovely emails, comments, prayers etc - your support helps us to keep strong.

Jx



]]> http://www.ccj.me.uk/jjblog/index.php?entry=entry080226-090351 John, Jane Tue, 26 Feb 2008 09:03:51 GMT http://www.ccj.me.uk/jjblog/comments.php?y=08&m=02&entry=entry080226-090351